Sympathetic Head Tilt
I walked up to the doctors and back today – one hour and five minutes. My thighs and calves definitely feel it, but I’m so pleased I don’t care. I haven’t had any morphine since 3:45am. I feel fine, I did have some paracetamol to help my legs [morphine doesn't relieve muscle pain for some reason] earlier. When I got home I took a shower, afterwards I waited for the pain to make me put the flight socks back on and so far I haven’t had to.
Being able to go outside again for a significant length of time is indescribable. I spent so many months lying on the sofa too ill to even go upstairs. Even on days when I felt well enough to possibly leave the house my energy got spent so quickly that it was 10 minutes of air and movement – if that. Being trapped in the house was bad enough – but to be trapped in my head with the deafness as well… It was a very lonely, very isolated block of time. I don’t think anyone will ever understand unless they live it themselves. This freedom is intoxicating, exciting and brimming with possibility. I find myself with half a smile on thinking about my next walk and where I’ll go now that I know I can do an hour – maybe a little more.
I finished my application for incapacity benefit and it is going in the post today. I also finished the form to allow me to vote in US elections from here. So I’m pleased that I can cross those off my list.
Weasel and I had a brilliant Valentine’s evening. We had planned a fancier dinner and proper letters, but in the end a simple pasta dish was all we needed and I made a card which was 10x better than what a letter would have been. In her letter to me, Weasel said that this year has made us a stronger family and I swooned. I love that she is my family, I love the feeling of that word when it is about us. We watched Oranges are not the only Fruit – what we thought was a movie turned out to be a TV series and it was not good. We watched the first episode, debated about watching the second and we just couldn’t. Despite that, all things considered the evening was a complete success in my opinion.
While visiting Weasel in the library earlier this week I spotted a copy of A Clockwork Orange that I didn’t know we had. So I’ve started reading it. I’m only 34 pages in so far, I’m moving very slowly mostly because I have no idea what the fake words mean. Guessing the definition from the context is okay most of the time, but I get lost. Plus I’m not used to concentrating so hard while reading, normally I sort of fall into the book and swim along. We’ll see what we think, as always if I can read Lord of the Rings and Catcher in the Rye I can read anything.
I’m bracing myself to visit UKA tonight, I asked a few weeks ago for people to recommend books, websites, TV shows and films to me and I haven’t really been back since. I went once a day or so after, but got so overwhelmed I didn’t reply. Since then I’ve managed to regain some of my cognitive functions and I think I’ll be able to cope now.
Tomorrow we’re going to go to see Stoat, Mal & Doodle. I’m 50% excited and 50% nervous. It’ll only be for lunch, so I shouldn’t be nervous and I was much more ill when I was there in October than I am now, so I don’t know what I’m doing. As long as I make sure that I take all the drugs I might need, flight socks and anything else I might need I’ll be fine.









Hooray for fresh air! I’m so happy for you I can hardly stand it.
My favorite made up word that I made up is ‘McGiggy’ as in, what’re you gonna do with the little mcgiggy?
Hang in there with A Clockwork Orange. It’s a good book, but I didn’t enjoy the film.
You are so amazing – you have nothing to worry about. The visit will be great.
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The regaining of freedom sounds utterly amazing, to be honest! Obviously sucks that it has to happen, but there is something to getting to explore the world again, to experience it anew
Weasel did mention in passing your card, she seemed overjoyed by it
And as for going for a simple pasta dish in the end… I’m an utter pasta addict, and have been raised for such things to be comfort food to me, so I can imagine little better!
I’m so happy for you both
Regarding the UKA thread, I don’t think I mentioned any of my physical collection (I still need to sort though those!), but anything downloaded I could probably burn out a DVD of and drop it in the post, rather than you having to download it again. And apparently Psych is now being broadcast on BBC2, so you might want to set your magical hedgepig going to collect it, if it sounds interesting
Stoat & Mal seem lovely, and I know Doodle is
Tomorrow is going to be a good time, I am certain! I know the nerves thing though all too well, but know that we’ll all be sending you our support!