Hi.

I’ve had a difficult week. I have been reducing [and stopping as of today] the morphine tablets this week and it turns out that the process makes me feel nauseous. So I’ve been having loads of fun with that. We also decided to stop the second antidepressant-that-was-really-being-taken-for-pain-not-depression [or ATWRBTFPND*]. It turned out that it was actually the reason I was sleeping so well too. Only took me three nights of insomnia to figure it out. Go me.

* I totally want to make this part of my regular vocabulary somehow. I will think on it.

I hate insomnia. I’m usually too tired to do anything productive so I just lie there and watch the clock tick forward. Boring. I also had the bonus this time of feeling really hungry yet nauseous. Fun times.

So that counselling thing we were going to go to today? It turns out that I wasn’t eligible for it since I’m not terminal. So we went back to the GP’s today and I have a form to see their counsellors. This is okay with me. He also suggested that we ask my vasculitis nurses if they know of any groups that I could join not necessarily for WG since it is so rare, but for people with chronic conditions maybe or vasculitis conditions overall. Moving forward anyway.

Horatio has his Mum’s car this week while she’s on holiday and originally I had my injection on the 4th which meant that I couldn’t see him because I’d be busy being nauseous and very very tired. But then we had that course and we moved my injection to Monday. I was hoping to see a local hyacinth garden this weekend with Weasel’s parents but it turned out that they were away this weekend. My brain just barely managed to fit all of these facts together, so we [my brain and I] suggested that Horatio come down and take Weasel and I to the garden. We’d all get to hang out and be geeky too – fun for the whole family. He accepted and should be here in time for lunch.

The sad thing is that I’m kind of proud of myself for figuring it out. My brain has been so slow for so long, I mostly try to blame it on the steroids – we call it ‘pred head’ in WG circles. Good times.

Since today is the first day my stomach hasn’t tried to kill me I’ve eaten a banana for breakfast, pasta for lunch and for dinner Weasel made us wonderful salad. We started eating said salad at approximately 8pm. It is now 10:15ish and I’m still working on it. I think it is a new slow eating record for me.

I’m apparently in a ironic mood. I’m running with it.